Skip to main content

Birthday Month Fundraiser & Back to "Normal"

 Hello everyone! It's nearing the end of Chiari Awareness Month, and it's been pretty darn successful if you ask me :) my birthday fundraiser I do every year raised well over $200 in less than 24hrs and I'm so grateful for that! I personally choose to donate to the Bobby Jones Chiari & Syringomyelia Foundation for SO many reasons, and they always take donations year round, so feel free to check out their website at bobbyjonescsf.org to learn even more!






As of Sept. 9th, I'm officially back to work in the dance studio, feeling as normal as it can be :) we are following all of the CDC and government guidelines and everything has gone so smoothly with no complaints that I've heard of. It's so so good for the soul to be back with my students working hard and creating again. It has been tough on my conditions to go from quarantine to working again, basically having a full 6 months off, but I think in another 2 weeks, my body will be all adjusted again. 

Not a lot has changed this month symptom wise. I have had a lot of brain fog and concentration problems, but the ever changing weather was a lot to blame for my cognitive issues this month. The wildfire smoke definitely didn't help either! SO glad to have clean air again :) 

As amazing as it was to have resting time, I'm very grateful to have some sort of a routine again. Still pretty afraid of all the germs and the virus, but I'm doing everything I can to protect myself. I will talk to you all next month about any other updates! Thank you for always being the best support system! 

Comments

Post a Comment

Popular posts from this blog

End of Year Recap: 2020 Edition

Well what a year it has been .. Everyone knows this though, so I'm not going to go into too much depth about how crap of a year it was and say all the cliche things about how "excited" I am about 2021. As much as I truly do hope this next year is going to be a different year and hopefully full of positive change, I just don't trust people around me to make it happen! It takes all of us to work together, but there's too many people out there who don't think this can effect them, and you all know what I mean when I say "this." I'm thankful though to live in a state where things are taken much more seriously and cases are actually much lower than the rest of the country due to our state government taking those earlier precautions. So for that, I'm grateful.  This year for me has for sure been one of the hardest yet. I used to never worry about my work ... I've had a job or two since I was 16 years old, and to have to go onto unemployment for...
Post a Comment
Read more

4 Weeks Post-Op (Posted 6/6/2016)

I can't believe it's been just about a month since I've had my surgery! It feels like time has gone by so dang slow, but if I reflect on my journey, time has gone by relatively quick. I have been making some pretty good strides. We are successfully weaning me down off my narcotics. I got rid of my 3:15am dose, I only take a muscle relaxer at 12:15am, and during the day my dose of oxy has decreased from 3 to 2 tablets and I every other dose I only take 1 tablet. I'm hoping that this week I will get down to only taking 1 oxy and then if that works, the following week I could take an oxy only if I don't take a muscle relaxer. That's my hope at least! Lately I have been thinking about how being diagnosed with Chiari is permanently changing my life. Before surgery I was just mainly focused on the fact that I was having a major operation done and honestly I was just trying to get through the rest of the semester at Cornish in one piece. After surgery for the past thre...
Post a Comment
Read more