Skip to main content

Determination is Everything (Posted 8/23/2016)

My title for this post honestly speaks for itself... I have shocked myself with how well I am handling everything and for how far I have come in only almost four months. This update will be short and random mainly because a lot of little things have happened along the way.


First off, I got a tattoo! It's small, but I love it. Purple ribbon with my diagnosis date and it couldn't be more perfect :)


On Sunday I move back up to Seattle to start my semester at Cornish and I honestly thought I wouldn't be able to make it back. Yes I am having an alternate schedule, but I will be in the environment that I love so much and that's all that matters. I beat the odds because of my determination.


Since I'm moving back soon, I have looked back at my past summer, of which I don't remember most of, and am shocked. It's almost impossible for me to think about where I was at in May to where I am now. I am honestly a completely different person. I have always had a huge work ethic, but I have learned to push through so much more than I thought possible. If I could make it through these past four months, there's nothing I can't accomplish. The world is at my feet, my cards have been dealt, and now I get to see what I can do with it.


Now that I am able to comprehend more and think about my future with Chiari, I have seen how much I personally want to educate the world around me about this chronic condition. I really want to use my blog as a way to connect people together and to help people understand my journey. As of late, I have been thinking that after I graduate with my BFA in dance from Cornish, I have a strong urge to get my Masters in Communications and possibly become part of a non profit organization or maybe even start my own to get more neuroscientists to research Chiari. Again, this is all in my dreams, but it's SO important for me to do this. Dance is for sure my calling, but I now need to share that calling with this new one. This dream is looking even brighter now because South Sound Talk, a local website newspaper focused on positive news/stories, is writing an article on my journey and I am beyond blessed for this opportunity! (More info. to come in the later weeks!)


Alrighty, last but not least, yes I am going back to school, but September is a HUGE month! September is Chiari awareness month! In fact, Niagara Falls will be lit up purple on September 3rd in honor of Chiari awareness month, and that just so happens to also be my 20th birthday! It was meant to be! September will also be the month that my article comes out (which I will of course share here) and that will be the jumpstart to my path of educating others. For the first time in a long time, I'm excited for what is to come. Thank you all for coming along on this journey with me! #CMstrong

Comments

Popular posts from this blog

5 Years

 March 28th, 2016. That was the day my life forever changed.  Here we are now, March 28th, 2021, five years later, and my life is no where where I expected or thought it would be that day when I was 19 years old sitting at Swedish Neuroscience Institute at Cherry Hill in Seattle, still a dance major at Cornish College of the Arts. I don't like thinking about that day in detail, in fact when I do, I feel like I become a different person. The past few weeks leading up to today felt very different than in years past.  On March 17th, I was lucky enough to be able to get my second dose of the COVID vaccine and I feel SO relieved which brought a lot of emotions up for me. My anxiety has eased up a small bit and a weight has come off my shoulders. It's been a year since this pandemic hit, and I've never been more aware of my health then ever before.  Yesterday, my dancers had their first competition in almost 2 YEARS. COVID took away all of our competitions we were scheduled for l

Day 4 Post-Op (Posted 5/13/2016)

Well, I had my surgery! Check in time for it was at 6am, so I was up bright and early along with my whole family. My anxiety level was through the roof as expected. The first nurse then called me in and took me back to registration and I had my mom come with me. At that point I had changed into my gown and was on the hospital bed with an IV line in me. It was all happening so quickly and I was so scared that I started crying. Oh and of course I am the youngest patient in there... But my nurse Jenn at that time was super nice and helped me out and so did my mom. Then I had to say goodbye to my family and go down into pre-op and OR. I started crying again during pre-op cause there were so many weird noises, oxygen tanks, needles, and bright bright BRIGHT big lights. My anxiety was even higher. So after I met my anesthesiologist, I was given a calming medication (aka "happy juice") and right after they inserted that into my IV. After that moment, I blacked out and don't reme

My Blog Absence (Posted 9/30/2016)

A big hello to all of my followers and a big thank you for being so patient... This is probably the longest I've waited to give an update, but I have had one hell of a month. Side note: One of the best things that have happened this month was the article from South Sound Talk on me. I have the link below :) it follows my story: my diagnosis and how I doing now. So check it out! http://www.southsoundtalk.com/2016/09/08/dancers-focus-remains-on-pointe-through-brain-surgery/ Alrighty, time to get to the real stuff.. Earlier this month or even this week (Chiari brain fog guys am I right?) Any who.. We were talking and we talked about how we hear all of these success stories, but they never or barely touch on the hard times, because people want to hear about the good with success stories. Totally understandable. However I feel like that's why I failed and failed over and over again to post anything, because it truly didn't feel like any good was happening in my day-to-day life.