Skip to main content

Each Day is a Blessing (Posted 4/11/2016)

This weekend I was able to go home and spend some quality time with my family. It is honestly very hard going through all of these medical struggles and being away from your biggest support system. However I feel rejuvenated and ready to take on this next week.


Earlier today I went on a hike. It was a hike I had been on many times before. It's about two miles all uphill and then two miles back downhill. It took me twice as long to complete the hike than it normally does and that's when I really realized how much my Chiari is effecting my life. I'm a person that tends to just work through things and not even notice how it is truly making me feel. Ever since my diagnosis, I've been consciously more aware of my symptoms, what is normal and not normal. I realized that I actually have a consistent pressure within my skull. I thought that was normal, and I guess it is normal on Chiari standards.


Back to the hike.. I love hiking. There's just something about the satisfaction of getting to the end and the pure bliss of looking over the edge of a cliff. Last summer I hiked all the time, and I did this particular hike multiple times with no problem. Today was a great day and I loved being outside, I just see now how much the Chiari is part of my every day. The pressure kept increasing as the hike continued and I became much more fatigued faster than ever before. When I ended the hike, I was pretty proud of myself for making it. I just now know that I really can't do more intense hikes before surgery, or I guess even after for a little while.


My title of this entry on my blog is that every day is a blessing. As I was reflecting on my day, I realized I was thinking a lot about how much pain I was in. Then I started thinking positively. Today my blessings were abundant. I was able to experience a thrill of a hike (even though it was a doozy), I got to hang out with my sister and best friend for hours, and I was able to have a nice dinner out with my entire family before heading back to school. It's the little things in my daily life and my support system that will get me through pre and post surgery times. Today I am blessed, just like I am every day. #CMstrong

Comments

Popular posts from this blog

3 Months & Counting (Posted 8/8/2016)

Hello everyone. It's about time for another update! Many things have happened in the past three weeks, but I just find it weird that I'm a day away from my three month post-op mark. It feels like it was just yesterday that I was still a freshman at Cornish moving out and trying to prepare for the surgery itself! July 24th-31st I was able to be in Huntington Beach, CA with my best friend Megan! It was such a perfect getaway, nice and relaxing. It was so great to see her and to be able to escape my reality, even if it was just for a week. I could write about that trip for hours, so I will just keep it at that so I don't begin to ramble. When I got home, I didn't give myself a break. The next day, I took a contemporary class, taught a class, and went to physical therapy and I did pretty well I have to say! I've been working really hard in my rehabilitation process with physical therapy and massage therapy and it's been helping a lot. At my 6 week appointment, I was...

2 Weeks Post-Op (Posted 5/23/2016)

I cannot believe it has only been two weeks since I had my massive surgery. I can honestly say that I am pretty darn proud of how far I have come since May 9th. On a side note, I was trying to create a mid-week post, but for now at least I think updating once a week through my blog is most beneficial for myself. This way all of my followers can get a summary of how things are and I can reflect on my personal progress! So here we are. This past week has been a lot easier than the last. After my puking incident, we were able to get my pain under control and have it stay that way consistently. I was noticing a pattern of what times during the day I get tired or need rest and when my pain is increased. By switching some of my medications around on my time schedule, I was feeling a lot better and more relaxed (to the highest degree a brain surgery patient can be). Wednesday was my first day out of the house since Oliver's adoption and it was so successful! I'm going to be honest and...

Day 4 Post-Op (Posted 5/13/2016)

Well, I had my surgery! Check in time for it was at 6am, so I was up bright and early along with my whole family. My anxiety level was through the roof as expected. The first nurse then called me in and took me back to registration and I had my mom come with me. At that point I had changed into my gown and was on the hospital bed with an IV line in me. It was all happening so quickly and I was so scared that I started crying. Oh and of course I am the youngest patient in there... But my nurse Jenn at that time was super nice and helped me out and so did my mom. Then I had to say goodbye to my family and go down into pre-op and OR. I started crying again during pre-op cause there were so many weird noises, oxygen tanks, needles, and bright bright BRIGHT big lights. My anxiety was even higher. So after I met my anesthesiologist, I was given a calming medication (aka "happy juice") and right after they inserted that into my IV. After that moment, I blacked out and don't reme...